Micah's pulminologist Dr. S called this evening to let us know the results of Micah's sleep study that he had done on Tuesday. Good news. Micah has improved. :o) A few months ago Micah had a nap study done these results came back showing that Micah spent 34% of his sleeping time with a oxygen saturation below 90% (he should be above 95%), this last sleep study came back with results of him only being below 90% for 4% of the time!!!!!! That's a 30% difference! Yeah!
Dr. S said that Micah is improving yet he still doesn't know why Micah desats. There are two things that happen while Micah sleeps one...is central apnea where he actually stops breathing (this is controlled by the brain) and the second is obstructive apnea where something obstructs his airway while sleeping and causes his o2 to drop.
Where we are going from here? Well let me tell you, we are moving in 4 1/2 weeks and the next 4 1/2 weeks are going to be very busy it appears. I am wanting to get as much done here as possible for a couple of reason...one...I trust Dr. S and his judgement. two...we have childcare for Noah here usually and I know no one up in Rochester who could watch Noah while I take Micah to test. three...I don't want to wait for answers...i am not being patient and I want them NOW!
So...Dr. S feels it is important for Micah to get an MRI of his brain. Micah has a few different issues going on with him aside from his breathing, he has poor swallow which causes him to aspirate, he has silent reflux with aspiration, and he has had neuroblastoma. All of these issues along with the central apnea are controlled by a certain part of the brain and the autonomic nervous system, an MRI will show in detail different areas of the brain to see if something is going on/wrong. This will hopefully be set up for in about a week or so. Dr. S also would like an airway evaluation for Micah as well. We see Dr. S on Tuesday and will find out where else he would like to go from here.
Please please pray that all goes well in these next 4 1/2 weeks. We have a lot to do on top of packing and moving. Pray for the strength to do it all. Please pray that Micah continues to get better!
Otherwise we are all doing pretty well. It's so hot here already, we are looking forward to cooler MN days and nights!